Site
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Description
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| ERS.net NEW
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| European Lung Foundation NEW
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| Child Lung Foundation |
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| BreatheOn |
Uk National charity supporting all young people up to the age of 21 years who are either ventilated or technology dependent for over three months. |
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| British Thoracic Society |
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| Orphanet |
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| Breathtakers |
a support group for sufferers of Obliterative Bronchiolitis |
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| The National electronic Library for Health - Respiratory |
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| Primary Ciliary Dyskinesia Family Support Group |
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| European Organisation for Rare Diseases |
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| British Paediatric Respiratory Society |
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| Contact a Family |
For families with disabled children |
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| British Paediatric Surveillance Unit |
(RCPCH) |
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| Have a breatherNEW
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A support group for oxygen-dependent children |
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| chILD Foundation |
Parental support group in USA for Interstitial Lung Disease |
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| Children Interstitial Lung Disease Yahoo Group |
Chat room for parents with Interstitial Lung Disease |
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| Little Leakers |
USA site for children with Lymphangiectasia |
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| Idiopathic Pulmonary Haemosiderosis |
USA site for children with Idiopathic Pulmonary Haemosiderosis complete with bulletin board |
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* See Judge: Web sites for Health. The Judge project has developed guidelines for judging the quality of health information Web sites.
