British Paediatric Orphan Lung Diseases (BPOLD)


Welcome to BPOLD

BPOLD aims to establish a registry of nine rare lung diseases in children in the UK. The registry will provide epidemiological data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children.

BPOLD provides the following functions (click on each heading to be taken to the page).

A Monthly Returns email shot, which allows registered BPRS clinicians* to submit monthly details of their paediatric patients with orphan lung disease.

An Information Resource for clinicians, patients and their families/carers, with the latest knowledge provided on each disease.

News on related sites

A Support Forum, aimed at establishing self-help groups for patients and their families/carers.

Please use the top menu to navigate the site. Clicking on the BPOLD logo, on the top left of the screen, will return you to this page from anywhere in the site.

For further information about the BPOLD project (including patient & parent information sheets) or to contact the project organisers, please use the Contacts page.

*You must register with the BPOLD administrator to receive the Monthly Returns email shot which allow you to submit monthly returns data.

last updated 30th March 2017
BPOLD is funded by the Edinburgh University Research and Development Fund
BPOLD wishes to acknowledge funding support for 2017 from Breathtakers UK